Previvors and Survivors

A non-profit organization
Subscribe to my RSS feed

Registration

Links

Avastin Controversy

posted on December 17, 2010 at 7:19 pm

  

BRCA NEWSWORTHY

Thursday, December 16, 2010 The FDA rejected the breast cancer drug Avastin. It will still be used to treat other types of cancer, but the FDA states it failed to prove that the drug helps more than it hurts breast cancer patients who are taking the drug or even prolongs their life. Tell that to the masses of women taking this drug who feel that Avastin is the only hope they have against this dreadful disease.

 

 

 

 

 

High Prevalence of BRCA Mutations in Breast Carcinoma in Situ

posted on at 7:18 pm

BRCA NEWSWORTHY

On December 14, 2010 Myriad Genetics, Inc. published their study informing us that women who have a family history of breast cancer have yet another reason for BRCA testing. Apparently, a large percentage of women who have been diagnosed with breast cancer in situ are BRCA positive & again, are at a high risk for invasive breast & ovarian cancer.

 

Please follow this link for the whole story:  http://investor.myriad.com/releasedetail.cfm?ReleaseID=536858

Pancreatic Cancer & the BRCA gene

posted on October 16, 2010 at 4:18 pm

BRCA NEWSWORTHY

The BRCA Connection-Are Jews more vulnerable to pancreatic cancer?

Written by: Fredda Sacharow from the jewishexponent.com  follow this link for the entire article: http://www.jewishexponent.com/article/22092/

According to the Chicago Center for Jewish Genetic Disorders, people who test positive for the BRCA2 gene are also at a higher risk of developing pancreatic cancer.

Also noteworthy was the information that Ashkenazic (Eastern European Jewish Descent) families who have 2 first degree relatives who have had pancreatic cancer were also at a higher risk of having the BRCA2 mutation.

It is being recommended that if you are Askenazic & have a family history of OVARIAN, BREAST or PANCREATIC CANCER you get genetic testing.

Pancreatic cancer is difficult to diagnose early. Symptoms could include: backaches, weight loss, appetite loss, jaundice or yellowing of skin & nausea, & stool changes. If you have symptoms–see your doctor

Menopause pills & kidney stones

posted on October 12, 2010 at 6:51 pm

BRCA NEWSWORTHY

Postmenopause hormone pills linked to kidney stones

Originally published: October 11, 2010 7:31 PM
Updated: October 11, 2010 11:35 PM
By LINDSEY TANNER. The Associated Press  

Please follow this link for this very important information:  http://www.newsday.com/news/postmenopause-hormone-pills-linked-to-kidney-stones-1.2351965?p=

At risk alarms are ringing yet again for post menopausal women taking “hormone pills, Pempro, pills containing estrogen plus progestin, or Premarin, estrogen-only pills.” These alarms are warning these women they are at risk for developing kidney stones.

As always discuss the risk vs. benefit with your physician. We already know that hormone replacement medication has been linked with heart attacks, breast cancer & strokes.  It is further recommended that if you must take these medications take them for as short a period of time as possible to limit your health risks.

 Be well you all…

BRCA – PREVIVORS – BREAST CANCER – HBOC

posted on October 2, 2010 at 2:39 pm

Set your video recorders… Previvors to be featured on CNN this Sunday (tomorrow) at 4:40pm EST. CNN to be covering cancer and genetics at this time slot on every Sunday in the month of October. Tune in!!!

http://www.cnn.com/CNN/anchors_reporters…

BRCA & PREVIVOR & SURVIVOR AWARENESS

posted on September 26, 2010 at 9:22 am

PLEASE JOIN–AWARENESS CAMPAIGN: This week is the start of the very first Hereditary Breast & Ovarian Cancer Awareness week as well as Wednesday 9/29/10 is the very first National Previvor Day. This is what our group is about!
http://www.previvorsandsurvivors.com   & facebook:  http://www.facebook.com/group.php?gid=295172335565
Help us spread the word by sharing this message to spread awareness.

How did your representative vote?

posted on September 17, 2010 at 10:59 pm

If you want to know how your local Congressional Representative voted on the H.Res 1522

please follow this link: http://www.govtrack.us/congress/vote.xpd?vote=h2010-523

Resolution:H.RES.1522 National Previvor Day & National HBOC Week

posted on September 15, 2010 at 9:07 pm
It is now 9/15/10 & I share this you tube link with you! Resolution: H.RES.1522 HAS PASSED!

National Hereditary Breast & Ovarian Cancer Week is now officially the last week of September & the last Wednesday of September is National Previvor Day. Please follow this link:

http://www.youtube.com/watch?v=9ocrQIyc8n0

 

 

Could it happen?

posted on September 12, 2010 at 4:32 pm

Hello Everyone,

What does a National Hereditary Breast & Ovarian Cancer Week & a National Previvor Day mean to me?

My group http://www.previvorsandsurvivors.com  was started because as “previvors” we are welcome at every breast cancer support group- but not really! Some survivors resent us because we haven’t survived cancer but we have survived something. After I went to my first breast cancer event & had a “rude” experience, I vowed that I would start my previvor & survivor group & help all who needed help as well as educate people as much as I could along my journey.

Together with you all, I would like to bring BRCA AWARENESS to all. We are survivors of a different kind—so again, let’s celebrate & unite & offer hope to all. Please join us by passing this message along & writing to your local Congressonal Representatives.  Follow this link: https://writerep.house.gov/writerep/welcome.shtml  to help pass this resolution: H.RES.1522

Be well!

BRCA PREVIVOR AWARENESS

posted on September 10, 2010 at 6:47 pm

9/10/10 Shana Tova to all…after 2 days of reflection, I am ready & determined to start my New Year off by bettering my BRCA “PREVIVOR” world. I have a renewed energy to educate & get the word out about “prevention & the need for regular doctor visits & vigilant testing.” Together with you all, I would like to bring BRCA AWARENESS to all. We are survivors of a different kind—so let’s celebrate & unite & offer hope to all. Please join me by passing this message along- copy & paste this message & put it into an email. My journey is just beginiing–thank you for your support. xoxo http://www.previvorsandsurvivors.com

Latest Comments

Donate

Donate to help in the fight against cancer!

Login to Chat
Enter Nick:
developed by wordpress experts