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posted on June 26, 2008 at 5:02 pm
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BRCA Social and Support Network – BRCA Umbrella

UserPost

3:20 am
March 6, 2009


BRCA Umbrella

New Member

posts 1

1

Hi Tobey

Great site!  Let's see it grow!  Do you use Twitter?  VERY handy for promotion – check us out too http://www.twitter.com/BRCAUmbrella

After my own struggle through the BRCA gene mutation diagnosis, I decided to help others.  I started with a blog and then onto a social network called BRCAUmbrella (http://brcaumbrella.ning.com).  We have 84 members from across the globe all sharing stories, surgery photos, links, blogs and very active forum.  This is an online support group that works.  We are together trying to form more local support groups by pressing our genetic counsellors with our desire for physical support groups and offering our voluntary services.

I believe we need to help each other through this thing.  It is deeper than being an individual with a health problem – it effects beyond just you – its a lonely place sometimes and all you want to do is reach out and talk to someone else.

PrevivorsandSurvivors has been added to every BRCA Support Group on our site.

Cross promotion is the key, let's connect and make this a comined thing rather than islands of many.

Sending out some big BRCA positivity (lol) to all!

Together we are stronger than we can ever be alone.

Leigh-ann

BRCAUmbrella

8:05 am
March 6, 2009


TOBEYRDH

Member

posts 156

2

Thank you so much for your kind words Leigh-ann. Obviously I feel the same, or I wouldn't have started this!

I look forward to working along side of you & staying in touch with you in the future. Feel free to let me know how we can help here!

Good luck to all of us. Stay well!

Tobey


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