In this case, the words are MRI MRI MRI -  second opinion from breast surgeon – neurological surgeon – back to the general surgeon for a referral.  In spite of the urgency to get your life back, take time to go to a team of different specialists who can read your MRI looks at other tests maybe and give you more input.

LindaBB

Dizz- you have another member who is willing to speak to you privately as well- once again check your email.

This member went through months of pain management & several rounds of injections.

I had a bilateral mastectomy done Dec 17, 2010. Recovery and reconstruction was great until March of 2011. Pain has been non stop since then, just in one area, just on one side. I have gone through several rounds of painful pain management injections, acupuncture, botox injections, steroid injections (and yes the expandable saline filled implant got ruptured and has a slow leak). I tried physical therapy and hands on massage and manipulation. I had surgery in May of 2011 to see if there was scar tissue or infection (negative on both). Right now the implant is completely deflated (i  have a prosthesis) hoping to give the area time to settle down and heal. I was scheduled to have my exchange surgery on Jan 19 (to exchange the saline implants for permanent silicone one)–that is on hold indefinitely. I am going to go see another plastic surgeon for a second opinion at a big teaching hospital in NYC. I have COMPLETE faith and trust in my doctors, but I need a second set of eyes and another prospective (my plastic surgeon agrees with this course of action).  NOTHING is helping and I am completely frustrated, angry and running out of patience.  My pain dr and plastic surgeon both agree that this is caused by a nerve ending and possibly the next surgery will kill the one(s) that is causing all the trouble.  Had an EMG done by another pain dr (not the one I am using) and it was negative. Current pain dr does not feel that an MRI will help.

from Sharon:

I am about two and a half years our of my surgeries; bilateral mastectomy with reconstruction. I have “rain pain” too! It occurred to me, just like people have back or knee pain when the weather changes, I have discomfort at that time as well.

I also have scar tissue issues. My doctor says she wants to go back in, scrape out the scar tissue and perhaps give me another implant because I feel that the gummy bears are too hard, but I'm not ready to redo the process, although it will be much less of a recooperative period. Maybe in another year or so. Or maybe I'll wait until the implants need to be redone, in less then 8 years now.