previvorsandsurvivors.com,Inc. FUNDRAISER for Long Island,NY Community
BRCA-patient survey
http://preview.tinyurl.com/BRCA-Pt-survey
Lets get our feelings out there! Please participate in my 5 minute online survey!
pass it on!
THANK YOU Sewanhaka H.S. Cosmetology-A JOB WELL DONE!
YOU & YOUR STUDENTS ARE THE BEST….THANK YOU THANK YOU THANK YOU…We are so grateful!
You put alot of time and effort into this ♥ and we all had a good time.
Most of all…
WE THANK YOU ALL FOR YOUR MOST GENEROUS DONATIONS
#BRCA #BREAST CANCER #OVARIAN CANCER #PREVIVORS #SURVIVORS
BRCA PREVIVORS AND SURVIVORS—-check this out!
I just finished reading a book from one of our BRCA previvors and survivors members and I wanted to recommend it to anyone facing the preemptive decision of having a bilateral prophylactic mastectomy and or oophorectomy.
The book is: BEYOND THE PINK MOON by Nicki Boscia Durlester. You can follow our link for all information. If you would like an autographed copy of the book, you can e-mail her directly at: nicki@beyondthepinkmoon.com. Shipping will also be free.
Please order her book, as it is a very inspiring account and honest look at the issues we face. Nicki, has also offered to give back to our previvor and survivor community, by donating 25% of the books sales if you mention previvorsandsurvivors.com.
It is her personal memoir of legacy, loss and survival. I found the story to be unbelievably riveting. No matter how many stories I hear from our members, it always moves me to hear someone’s journey and what brought them to our site. We, who are diagnosed positive with the BRCA gene mutation, all have the same fears for ourselves and our families, and somehow having this sisterhood here, brings us all together.
As always,
Be well you all…..
Tobey
MEN ARE WELCOME TOO!
BRCA Article from wsls.com 10/14/08
BRCA NEWSWORTHY
Is Breast Cancer in Your Genes?
You can follow the link to get the entire story!
http://www.wsls.com/sls/lifestyles/health_med_fit/article/is_breast_cancer_in_your_genes/19303/
The article is written by Mary Shedden from Media General News Service on October 14, 2008.
When someone you know & love gets diagnosed with breast cancer it often is a reminder for others to go and get checked! Besides a mammogram, sonogram & MRI, there is now genetic testing.
The test is very expensive & Myriad Genetics Inc. is the lab with the ability to identify the BRCA gene. It is a simple blood test. (You should also check with your insurance company as to their coverage policy.) You also need genetic counseling before & after getting tested for the BRCA gene mutation. Having a positive gene mutation is not the same as getting cancer, but you still need to make decisions. This is best made with a professional. They are trained to determine your chances & percentages of getting cancer after assessing your family history.
Should you get tested? Yes…If you have 2 or more family members with a history of breast & or ovarian cancer especially if the family member was diagnosed before the age of 50. Another criteria is if you are of Ashkenazi Jewish heritage. One in forty Ashkenazi Jews are genetically predisposed to breast/ovarian cancer. Everyone has BRCA genes but only a small amount of people wind up with mutated ones- the highest incidence being in Ashkenazi Jews.
Whether or not hereditary breast /ovarian cancer is in your family….GO GET CHECKED REGULARLY!
Support Groups
Friendsforlife.org founded by Hillary Sweet is a Long Island, NY organization dedicated to breast cancer survivors & their caregivers to provide support & inspiration to each other.
Support Groups
To find support groups in your community, go to:
www.cancer.org or call 1-800-ACS-2345
Here you will find trained cancer specialists staffed
with love 24/7!