NATIONAL PREVIVOR DAY 2011
Today is a very special “National Previvor Day” to me, so I wanted to honor it with a blog entry.
What makes today so special besides it being the 2nd ever National Previvor Day, it is also the start of Rosh Hashanah the Jewish New Year. So, I’d like to wish everyone HEALTH, HAPPINESS, PEACE & PROSPERITY for the coming year.
We have a special announcement that we have been saving just for today in honor of National Previvor Day. As of October 1, 2011 we will be providing the services that we have been so busy fundraising for here at previvorsandsurvivors.com. If you are BRCA positive and are living on Long Island, NY and are having a mastectomy and/or oophorectomy, we will be happy to provide our group’s services to you & your family. Feel free to follow the link: http://previvorsandsurvivors.com/services/ and if you have any questions, just email me at: tobeyrdh@previvorsandsurvivors.com.
Whether or not you live on Long Island, NY we would appreciate your help in passing this information along to people you know. Copy & paste our link, put it in an email to your friends, repost it on twitter and on facebook! Having a group dedicated to spreading the word about previvors and what it’s all about can save a life. There are tests out there to check whether or not you carry the BRCA gene that makes your family so predisposed to breast or ovarian cancer and there are prophylactic measures you can take to avoid cancer. Get your annual breast and gynecological exams. You can read about it at our blog: www.previvorsandsurvivors.com & our forum has plenty of good information too: www.previvorsandsurvivors.com/forum/. That’s what National Previvor Day is all about- getting the word out and saving lives.
Last, but not least, we have a page dedicated to our supporters. You can check it out at our website. We are asking for a minimum donation of $50.00 to have your advertisement there too. We are an all volunteer group and ALL YOUR DONATION DOLLARS go to our cause. Every $300.00 donation will help us help a family here on Long Island. We take donations here: http://previvorsandsurvivors.com/donate/
Be well everyone… Happy & Healthy New Year wishes… and HAPPY PREVIVOR DAY.
September 2011
It is Ovarian Cancer Awareness month!
previvorsandsurvivors.com wants to support all the ovarian cancer previvors and suvivors out there. If you can, please wear “teal” every Friday this month!
Symptoms of Ovarian Cancer are:
- Abdominal pressure, fullness, swelling or bloating
- Pelvic discomfort or pain
- Persistent indigestion, gas or nausea
- Changes in bowel habits, such as constipation
- Changes in bladder habits, including a frequent need to urinate
- Loss of appetite or quickly feeling full
- Increased abdominal girth or clothes fitting tighter around your waist
- A persistent lack of energy
- Low back pain
There is also a test out there called CA125. Please ask your doctor’s about it.
Be well you all……
-tax deductible donation-to benefit our Long Island NY BRCA, Breast Cancer, Ovarian Cancer Community
Send a gift of charity. UNITED STATES ONLY AT THIS TIME.
The cards fold in half to: 8 1/2 x 5 1/2 The in honor of / in memory of picture is on the outside of the card- your information as to the honor of/memory of shown below is on the inside of the card.
We are offering the two following cards for a minimum donation of $10.00 per card. If you would like to purchase either of the cards please follow the donation link to pay:
http://previvorsandsurvivors.com/donate/
then:
Please email: tobeyrdh@previvorsandsurvivors.com
with the following information.
please copy & paste this:
IN MEMORY CARD:
Your name:
Your address:
Your email:
IN MEMORY OF: (exactly how you want name to appear)
Address to send card to:
————————————————————————————-
IN HONOR CARD:
Your name:
Your address:
Your email:
IN HONOR OF: (exactly how you want name to appear)
Type of Honor: (birthday, anniversary, graduation, etc.)
Address to send card to:
Gynecological Recommendations
When I was diagnosed BRCA positive, it was also recommended to make gynecological choices. My genetic counselor along with my doctors recommended a procedure called Bilateral Salpingo Oophorectomy. You try saying that three times fast! It is the surgical removal of your fallopian tubes and ovaries using an instrument called a laparoscope. The laparoscope has a tiny lens and light and enables the surgeon to do what he has to do with minimal scarring and a small incision. Minimal incision equals minimal pain! PLEASE DISCUSS ALL SIDE AFFECTS WITH YOUR DOCTOR, ESPECIALLY IF YOU HAVE NOT YET HAD ALL YOUR CHILDREN!
Also…very important…because you now have lost your hormones with the loss of your ovaries, it is important to keep up your bone and heart strength. It is important to exercise, eat a low fat diet, and discuss calcium with your doctor.
For those of us who have already had our children, let’s discuss MENOPAUSE! MEET ME IN THE FORUM FOR THAT ONE!