Previvors and Survivors

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Pizza & Pasta Benefit-come join us

posted on July 19, 2011 at 7:19 pm

-tax deductible donation-to benefit our Long Island NY BRCA, Breast Cancer, Ovarian Cancer Community

posted on June 17, 2011 at 10:33 am

Send a gift of charity.       UNITED STATES ONLY AT THIS TIME.

The cards fold in half to: 8  1/2 x 5  1/2   The in honor of / in memory of picture is on the outside of the card- your information as to the honor of/memory of shown below is on the inside of the card.

We are offering the two following cards for a minimum donation of  $10.00 per card. If you would like to purchase either of the cards please follow the donation link to pay:

http://previvorsandsurvivors.com/donate/

then:

Please email: tobeyrdh@previvorsandsurvivors.com

with the following information.

please copy & paste this:

IN MEMORY CARD:

Your name:

Your address:

Your email:

IN MEMORY OF: (exactly how you want name to appear)

Address to send card to:

————————————————————————————-

IN HONOR CARD:

Your name:

Your address:

Your email:

IN HONOR OF: (exactly how you want name to appear)

Type of Honor: (birthday, anniversary, graduation, etc.)

Address to send card to:





It’s called “The Great Cancer Hoax”

posted on at 10:31 am

I think this is something everyone should know about whether they agree with it or not. It is free until June 20, 2011. It’s called “The Great Cancer Hoax: The Brilliant Cure the FDA Tried Their Best to Shut Down… ” and

the website link is: http://articles.mercola.com/sites/articles/archive/2011/06/11/burzynski-the-movie.aspx

it was posted by: Posted By Dr. Mercola | June 11 2011 “Burzynski the Movie””

THANK YOU Sewanhaka H.S. Cosmetology-A JOB WELL DONE!

posted on February 11, 2011 at 12:10 pm

SEWANHAKA HIGH SCHOOL STUDENTS, FACULTY YOU ROCK!
Thank you so much for hosting the school event in our honor!

YOU & YOUR STUDENTS ARE THE BEST….THANK YOU THANK YOU THANK YOU…We are so grateful!

You put alot of time and effort into this ♥ and we all had a good time.

Most of all…

WE THANK YOU ALL FOR YOUR MOST GENEROUS DONATIONS

#BRCA #BREAST CANCER #OVARIAN CANCER #PREVIVORS #SURVIVORS

BRCA PREVIVORS AND SURVIVORS—-check this out!

posted on February 6, 2011 at 3:23 pm

 I just finished reading a book from one of our BRCA previvors and survivors members and I wanted to recommend it to anyone facing the preemptive decision of having a bilateral prophylactic mastectomy and or oophorectomy.

The book is: BEYOND THE PINK MOON by Nicki Boscia Durlester.  You can follow our link for all information. If you would like an autographed copy of the book, you can e-mail her directly at: nicki@beyondthepinkmoon.comShipping will also be free.

Please order her book, as it is a very inspiring account and honest look at the issues we face. Nicki, has also offered to give back to our previvor and survivor community, by donating 25% of the books sales if you mention previvorsandsurvivors.com.

http://previvorsandsurvivors.com/forum/other-brca-previvor-blogs/beyond-the-pink-moon-a-memoir-of-legacy-loss-and-survival/page-1/

 It is her personal memoir of legacy, loss and survival.  I found the story to be unbelievably riveting. No matter how many stories I hear from our members, it always moves me to hear someone’s journey and what brought them to our site. We, who are diagnosed positive with the BRCA gene mutation, all have the same fears for ourselves and our families, and somehow having this sisterhood here, brings us all together.

As always,

Be well you all…..

Tobey

BLAST THIS WWP2 Gene PLEASE

posted on January 25, 2011 at 1:23 pm

Bloomberg news has reported that scientists have identified a “rogue gene” ( WWP2)

Attacking the gene in the future will make a protein in our body stronger & will enable our bodies to stop the cancer from spreading.

Hopefully medicine in the future can provide us with drugs to target this WWP2 gene.

follow this link for the entire story:

http://www.bloomberg.com/news/2011-01-24/blocking-rogue-gene-could-stop-spread-of-cancer-u-k-researchers-find.html

Pancreatic Cancer & the BRCA gene

posted on October 16, 2010 at 4:18 pm

BRCA NEWSWORTHY

The BRCA Connection-Are Jews more vulnerable to pancreatic cancer?

Written by: Fredda Sacharow from the jewishexponent.com  follow this link for the entire article: http://www.jewishexponent.com/article/22092/

According to the Chicago Center for Jewish Genetic Disorders, people who test positive for the BRCA2 gene are also at a higher risk of developing pancreatic cancer.

Also noteworthy was the information that Ashkenazic (Eastern European Jewish Descent) families who have 2 first degree relatives who have had pancreatic cancer were also at a higher risk of having the BRCA2 mutation.

It is being recommended that if you are Askenazic & have a family history of OVARIAN, BREAST or PANCREATIC CANCER you get genetic testing.

Pancreatic cancer is difficult to diagnose early. Symptoms could include: backaches, weight loss, appetite loss, jaundice or yellowing of skin & nausea, & stool changes. If you have symptoms–see your doctor

Request for interview with women ages 18-39 who have tested positive for the BRCA 1 and 2 genes

posted on April 19, 2010 at 9:38 pm

My name is Sharlene Hesse-Biber and I am a Sociologist and Professor at Boston College.

I am conducting a study on women who have tested positive for the BRCA 1 and 2 genes. I hope to address the issue of why women seek this genetic testing and how they respond to a positive result, as well as the roles that other people in their lives play throughout the pre- and post- testing process.

I would like to set up a time to explore your experiences with genetic testing for the BRCA 1 and 2 genes. Such an interview would take about a half hour. Your participation in this research is completely voluntary, and if you choose to participate, you may withdraw from the study at any point throughout the project. I can interview you over the phone or if you are in commuting distance I can interview you in person.

I would also like to take a moment to tell you a little more about the study. I aim to address a current lack of research on women’s experiences with genetic testing for the genes linked to breast cancer and their responses to a positive result.  Some of the questions we will explore are:

  1. How do women seek genetic testing for breast cancer?
  2. What is the lived experience of women who have received a positive result? How is this affected if they have a family history of breast cancer?
  3. What decisions, if any, do they make once they have a positive result? Is there a difference between their immediate and long-term decisions?
  4. What role do their immediate family network, close friends, and co-workers play in their decision to get tested and in their post-testing experience?

If you are interested in participating in this study, please email me at hesse@bc.edu. I am also happy to answer any questions or concerns you may have.

Thank you for your time and I look forward to hearing from you soon.

Sincerely,

Sharlene Hesse-Biber

Professor, Department of Sociology, Boston College

Director, Women’s and Gender Studies Program, Boston College

Myriad Genetics vs. the people

posted on April 3, 2010 at 10:02 am

 

 

BRCA NEWSWORTHY

It’s not over yet, but right now the courts have ruled for the people! My favorite article thus far is: click here to follow the link:

Invalidation of gene patents will benefit patients

The article was written 4/3/10 & comes from the website: http://www.news-medical.net/news/20100403/Invalidation-of-gene-patents-will-benefit-patients.aspx

If the ruling is upheld genetic testing & diagnosis will be open to more companies. Competition will put more players into the field & hopefully will be beneficial for patients.

AWESOME BREAKING BREAST CANCER NEWS

posted on October 7, 2009 at 10:34 pm

BRCA NEWSWORTHY

Go to our forum.  Click on reader recommended links. Click on awesome breast cancer breaking news & follow the link for the story & the video. Canadian reasearchers decode breast cancer tumor DNA. This story was brought to my attention through: CTV.CA News.

The researchers decoded the patient’s metastic breast cancer & found all the mutations. If they can understand the mutations that cause cancer…they can cure it!

Another article also can be found in our same forum: More news out of Canada.

This article is titled: Tiny Chip Can Measure Estrogen in Breast Tissue. This story was brought to my attention by news.yahoo.com & the writer is: Julie Steenhuyser.

It’s a microchip device that can screen or see if breast cancer treatments are working by measuring estrogen levels. This research is still in experimental stages…but it gives us all a lot of hope.

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