Previvors and Survivors

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Will you be changing your drinking habits?

posted on November 1, 2011 at 6:47 pm

The American Medical Association today reported that 100,000 women were followed in a study over 28 years and the conclusion is that having less than one drink a day (even a glass of wine) could increase  your risk of breast cancer.

Three to six glasses of alcohol/week increases your risk of breast cancer by 15% and two glasses/day increases your risk to 51%.

It was further reported that 11% of breast cancer is related to alcohol consumption because alcohol increases levels of estrogen which fuels tumor creation and growth.

NATIONAL PREVIVOR DAY 2011

posted on September 28, 2011 at 8:32 am

Today is a very special “National Previvor Day” to me, so I wanted to honor it with a blog entry.

What makes today so special besides it being the 2nd ever National Previvor Day, it is also the start of Rosh Hashanah the Jewish New Year. So, I’d like to wish everyone HEALTH, HAPPINESS, PEACE & PROSPERITY for the coming year.

We have a special announcement that we have been saving just for today in honor of National Previvor Day. As of October 1, 2011 we will be providing the services that we have been so busy fundraising for here at previvorsandsurvivors.com.  If you are BRCA positive and are living on Long Island, NY and are having a mastectomy and/or oophorectomy, we will be happy to provide our group’s services to you & your family.  Feel free to follow the link: http://previvorsandsurvivors.com/services/ and if you have any questions, just email me at: tobeyrdh@previvorsandsurvivors.com.

Whether or not you live on Long Island, NY we would appreciate your help in passing this information along to people you know. Copy & paste our link, put it in an email to your friends, repost it on twitter and on facebook! Having a group dedicated to spreading the word about previvors and what it’s all about can save a life. There are tests out there to check whether or not you carry the BRCA gene that makes your family so predisposed to breast or ovarian cancer and there are prophylactic measures you can take to avoid cancer. Get your annual breast and gynecological exams. You can read about it at our blog: www.previvorsandsurvivors.com & our forum has plenty of good information too: www.previvorsandsurvivors.com/forum/. That’s what National Previvor Day is all about- getting the word out and saving lives.

Last, but not least, we have a page dedicated to our supporters. You can check it out at our website. We are asking for a minimum donation of $50.00 to have your advertisement there too. We are an all volunteer group and ALL YOUR DONATION DOLLARS go to our cause. Every $300.00 donation will help us help a family here on Long Island.  We take donations here: http://previvorsandsurvivors.com/donate/

Be well everyone… Happy & Healthy New Year wishes… and HAPPY PREVIVOR DAY.

September 2011

posted on August 31, 2011 at 10:00 am

It is Ovarian Cancer Awareness month!

previvorsandsurvivors.com wants to support all the ovarian cancer previvors and suvivors out there. If you can, please wear “teal” every Friday this month!

Symptoms of Ovarian Cancer are:

  • Abdominal pressure, fullness, swelling or bloating
  • Pelvic discomfort or pain
  • Persistent indigestion, gas or nausea
  • Changes in bowel habits, such as constipation
  • Changes in bladder habits, including a frequent need to urinate
  • Loss of appetite or quickly feeling full
  • Increased abdominal girth or clothes fitting tighter around your waist
  • A persistent lack of energy
  • Low back pain

There is also a test out there called CA125.  Please ask your doctor’s about it.

Be well you all……

It’s called “The Great Cancer Hoax”

posted on June 17, 2011 at 10:31 am

I think this is something everyone should know about whether they agree with it or not. It is free until June 20, 2011. It’s called “The Great Cancer Hoax: The Brilliant Cure the FDA Tried Their Best to Shut Down… ” and

the website link is: http://articles.mercola.com/sites/articles/archive/2011/06/11/burzynski-the-movie.aspx

it was posted by: Posted By Dr. Mercola | June 11 2011 “Burzynski the Movie””

BLAST THIS WWP2 Gene PLEASE

posted on January 25, 2011 at 1:23 pm

Bloomberg news has reported that scientists have identified a “rogue gene” ( WWP2)

Attacking the gene in the future will make a protein in our body stronger & will enable our bodies to stop the cancer from spreading.

Hopefully medicine in the future can provide us with drugs to target this WWP2 gene.

follow this link for the entire story:

http://www.bloomberg.com/news/2011-01-24/blocking-rogue-gene-could-stop-spread-of-cancer-u-k-researchers-find.html

I HAVE A QUESTION…

posted on January 4, 2011 at 9:26 pm

I was just speaking with a fellow breast cancer advocate & we got involved in a big discussion. Basically, cancer is a big big business to MANY people, so the big question that we have is HOW WILL WE EVER GET OUR CURE WHEN CANCER IS SUCH A BIG BUSINESS?

Anyone have an answer for us?

Once again previvors & survivors…our help is needed!

posted on August 24, 2010 at 2:51 pm

My name is Sharlene HesseBiber and I am a Sociologist and Professor at Boston College. I am conducting a study on women who have tested positive for the BRCA 1 and 2 genes and have stage IV breast cancer. I hope to address the issue of why women seek this genetic testing and how they respond to a positive result, as well as the roles that other people in their lives play throughout the pre and post testing process. I would like to set up a time to explore your experiences with genetic testing for the BRCA 1 and 2 genes. Such an

interview would take about a half hour. Your participation in this research is completely voluntary, and if you choose to participate, you may withdraw from the study at any point throughout the project. I can interview you over the phone or if you are in commuting distance I can interview you in person.

I would also like to take a moment to tell you a little more about the study. I aim to address a current lack of research on women’s experiences with genetic testing for the genes linked to breast cancer and their responses to a positive result. Some of the questions we will explore are:

• How do women seek genetic testing for breast cancer?

• What is the lived experience of women who have received a positive result? How is this affected if they have a family history of breast cancer?

• What decisions, if any, do they make once they have a positive result? Is there a difference between their immediate and longterm decisions?

• What role do their immediate family network, close friends, and coworkers play in their decision to get tested and in their posttesting experience?

 

If you are interested in participating in this study, please email me at hesse@bc.edu. I am also happy to answer any questions or concerns you may have.

Thank you for your time and I look forward to hearing from you soon.

Sincerely,

Sharlene HesseBiber

Professor, Department of Sociology, Boston College

Director, Women’s and Gender Studies Program, Boston College

 

Parp inhibitors Chemotherapy Brca gene

posted on June 10, 2010 at 9:50 am

BRCA NEWSWORTHY

ASCO Update: Emerging agents to change the landscape of ovarian cancer treatment

June 8, 2010 Analysis by: Jason Tse

ASCO or the American Society of Clinical Oncology has recently come out & said that they have had “encouraging” results with parp inhibitor drugs when combined with chemotherapy in the fight against breast & ovarian cancer. These drugs are Avastin, olaparib, AMG386, farletuzumab & voreloxin. Avastin is the frontrunner in these drugs & hopefully will be approved in 2011 to fight Ovarian Cancer.

Follow this link for this very interesting, promising news!

http://www.glgroup.com/News/ASCO-Update–Emerging-agents-to-change-the-landscape-of-ovarian-cancer-treatment-48853.html

IT’S CALLED NEOPEC

posted on November 12, 2009 at 5:28 pm

BRCA NEWSWORTHY

Melbourne Trial of Breast Regrowth Surgery Neopec

11/11/09 reported by: Grant McArthurfrom perthnow

There’s a STEM CELL BREAKTHRU STUDY going on in Australia to help breast

Cancer patients, BRCA patients GROW BACK THEIR OWN BREAST TISSUE.

If this study is successful it could replace implants & breast reconstructions going on today.

The procedure uses the stem cells of our own fat to regenerate the growth of new breast tissue.

Follow this link for the entire story & video: http://www.news.com.au/perthnow/story/0,21598,26338552-5017320,00.html

Dose Guided Radiation Therapy (DVS)

posted on October 29, 2009 at 5:46 pm

BRCA NEWSWORTHY

10/27/09 news release: from St. Mary’s Hospital -NJ

DVS (developed by Sicel Technologies, Inc.) stands for dose verification system & it is being used only at St. Mary’s Hospital in Passaic, NJ. It is an implantable device & approved by the FDA. It lets the doctor know how much radiation is being absorbed instead of just guessing, therefore giving the patient a more exact dose of radiation therapy to their tumor.

Please follow this link for more information:

http://medicalphysicsweb.org/cws/article/newsfeed/40831

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